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Tavola Rotonda - 29 Maggio 
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Interregionale del Centro 22-23-24 marzo 2013
Interregionale del Centro versione stampabile 
Roma 22-23-24 marzo 2013
Venerdì 22 Marzo 2013
Nobile Collegio Chimico Farmaceutico
Universitas Aromatariorum Urbis
Chiesa S.Lorenzo Dé Speziali in Miranda
Via in Miranda,10
Ore 16,30 : Inaugurazione dell’Interregionale A.M.M.I. del Centro
Celebrazione 40ennale della Sezione di Roma
Benvenuto della Presidente Guya Paolini e della
Presidente Nazionale Maria Grazia Tatti
Saluto delle Autorità:
Ore 17,00 Le Malattie Rare:
“I Pazienti e la Rete”
CONVEGNO DELL’A.M.M.I.
Moderatore Dott.ssa Manuela Lucchini
Lettura Magistrale
“Cosa stà cambiando nelle malattie genetiche rare”?
Prof. Bruno Dalla piccola
Direttore Scientifico Ospedale Pediatrico Bambino
Gesù-Membro Comitato- Nazionale per la Bioetica
Rappresentante italiano dell’EUCERD.
Ore 17,30 Dott.ssa Domenica Taruscio
Director – National Centre for Rare Diseases
Istituto Superiore di Sanità
“La rete nazionale per le Malattie Rare”
Ore 17,50 Dott.ssa Renza Barbon Galluppi
Presidente U.N.I.A.M.O.
“Il ruolo delle Associazioni nell’accreditamento centri di riferimento
delle “Malattie Rare”
Ore 18,10 Dott.ssa Simona Bellagambi
Membro CD EURORDIS European Organisation of
Rare Diseases
Rappresentante U.N.I.A.M.O. FIMR nel Consiglio delle
Alleanze EURORDIS
“Il progetto Europeo per le Malattie Rare”
Ore 18,30 Discussione
Ore 19,00 Dr. Andrea Bartuli
Responsabile UO Malattie Rare e UO Genetica Clinica-
Ospedale Bambino Gesù - Roma
“La terapia personalizzata per il paziente con Malattia
Rara”
Ore 19,20 Consegna Borsa di Studio per:
“Progetto pediatrico di prevenzione della malattia cardiovascolare
nell’adulto”
Ore 20,00 “Cena conviviale”
Museo di Arte Farmaceutica – Via in Miranda,10
Ore 23,00 (Transfer in pullman all’Hotel Royal Santina)
Sabato 23 Marzo 2013
BW Premier Hotel Royal Santina – Via Marsala,22
Sala Lucrezia
Ore 8,30 Registrazione delle partecipanti
Ore 9,00 Apertura lavori
Guya Paolini Conti /Presidente A.M.M.I. Roma
Maria Grazia Tatti – Presidente Nazionale A.M.M.I.
Ore 9,30 Relazioni componenti, la Giunta Nazionale,
le Commissioni , le Fiduciarie Regionali
Votazione Tema Nazionale e Sede Interregionale 2014
Ore 11,00 Coffee break
Ore 11,15 Ripresa lavori e interventi
Ore 13,00 Chiusura lavori
Colazione libera per shopping
Ore 17,00 Transfer in Pullman dall’Hotel Royal Santina a Villa
Sanna, Cena dell’amicizia (Via Appia Antica 201)
Ore 22,00 Transfer in pullman all’Hotel Royal Santina
Domenica 24 Marzo 2013
Ore 10,00 Visita guidata al Museo Nazionale Romano di Palazzo
Massimo, Largo di Villa Peretti,1 –(Piazza dei Cinquecento)
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Scheda di prenotazione alberghiera BW Premier Hotel Royal Santina 4*: Via Marsala,22 Roma Per informazioni rivolgersi alla Signorina Nicoletta Coljca-Tel. 06.44875219 – Fax 06.4457205 – Email: reserv@rhr.itA conferma delle prenotazioni da effettuarsi entro il 10 Febbraio 2013 si prega di versare, tramite bonifico bancario, la metà dell’importo totale e di specificare ai fini della fatturazione i dati anagrafici, compreso il codice fiscale. Coordinate bancarie del BW Premier Hotel Royal Santina – Santina S.p.A. – Banca Popolare dell’Emilia Romagna – Via Marsala,22 IBAN – IT34 H053 8703 2020 0000 1073 344 Il Comune di Roma dall’ 01/01/2011 ha istituito la tassa di soggiorno, un’imposta a carico del Cliente pari a euro 3,00 per persona per notte che dovrà essere saldata prima del check-out, direttamente da parte dei Clienti. Nome………………………………………………………………………. Cognome……………………………………………………………. …… Indirizzo……………………………………………………………………. Cap…………………………………………Città………………………… Tel..……………………………………….Email…………………………. Qualifica A.M.M I…………………………………………………………. Accompagnatori ………………………………………………………… Data arrivo………………Data partenza ………..………………………. Totale n. notti ………………Camera Singola € 90,00 a notte Totale n. notti ……………… Camera Doppia € 110,00 a notte Prima colazione a buffet inclusa .
Scheda di prenotazione Interregionale – entro 10 Febbraio 2013 Nome…………………………………………………………………………… Cognome………………………………………………………………………. Indirizzo………………………………………………………………………… Cap………………………………………Città………………………………… Tel…………………………………….Email………………………………….. Qualifica A.M.M.I……………………………………………………………… Accompagnatori………………………………………………………………. Data di arrivo……………………………Data di partenza…………............
Modalità di pagamento Bonifico dell’intero importo intestato a Marcoccia Palma – Oggetto: prenotazione Interregionale del Centro Codice IBAN – IT48 J076 0103 2000 0009 4461 605 Inviare o faxare la scheda di prenotazione all’interregionale unitamente a copia del versamento entro il 10 febbraio 2013 a: Giuseppina Araco – Vice Presidente – Tel/Fax 067015718 – Email p.araco@tiscali.it Maria Teresa Boni – Segretaria – Tel/Fax 0645422040 – Email teresa.boni@live.it Segreteria Scientifica: Andrea Bartuli Responsabile UO Malattie Rare e UO Genetica Clinica – Ospedale Bambino Gesù Roma Email - andrea.bartuli@opbg.net Guya Paolini Conti Presidente Sezione A.M.M.I. Sezione di Roma - tel.3396170391 Email - guya.conti@libero.it Rosanna Mastrangelo Fain Binda Past President Nazionale A.M.M.I. - tel 3498131620 Email - ammi.roma@virgilio.it Segreteria Organizzativa: Anna Rita Manna Email- annaritamann@gmail.com Giuseppina Araco Email- p.araco@tiscali.it Antonietta Cervelli Casciani Tel.Fax-06.70300445 Maria Teresa Boni Email- teresa.boni@live.it
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Aggiunto alle 05:11 PM
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